Heres an pdate from Andrews mom Tuesday past --------- Hello everyone, we met with the doctors this evening to discuss today’s MRI. They believe things look the same and/or alittle better. We compared today’s scan to both last months and August’s scan. We also looked at swelling which they feel has gone down. They say that sometimes (like with Andrew) clinical presentation doesn’t match the scans. We will most likely do an enhanced PET scan that will be over-layed on the MRI because they are concerned that his clinical picture doesn’t match the scans (meaning they would’ve expected clinical improvement based on his scan). This will be great as it’ll give us a good picture of exactly what is going on, meaning we’ll know what is swelling vs scar tissue vs necrosis vs progression, etc. Treatment number 7 is tomorrow (11/22), I’ll do an update either tomorrow evening or the following day. Thank you all for your continued support, prayers and monetary donations - they all fill different needs that are all valuable to us. Go Fund Me: Saving Andrew PayPal: orlando_lorie@hotmail.com USAA bank: upon PM request Thanksgiving day ------- Last night was Andrews 7th Treatment here in Mexico and it certainly wasn’t without excitement. I’m actually starting to wonder what an easy breezy treatment is like because we surely don’t have many. The doctors said that the procedure itself went very smoothly, thank you God for that and for guiding their hands while working on my baby. Our excitement started after the procedure. For the 1st time in over 4 years of having a port-a-cath he pulled the needle out. To say it caught us off guard is an understatement. The nurse came in and attempted to reinsert the needle. I didn’t think that was a good idea but never experiencing this before, I went along with it. About 5 min later Andrew started to say his port bothered him. At this point we added gauze under the needle wings and taped it back down (and by we, I mean me as the nurses weren’t sure how to do a port on a kid). 10 more minutes go by and now Andrew’s really complaining about his port. Ports are placed to prevent pain and for easy access, so we knew something was up. Back come the nurses and low and behold the whole push it back in - bad idea. The needle wasn’t seated properly and now we had fluid leaking in to his skin, thankfully the fluid was only in the fatty tissue. The doctor was pissed at the nurse, as he should be. So, Andrew gets to be on antibiotics for 5 days to ensure we don’t have to deal with a port infection. They pumped the little fellow with pain meds as that fluid was very painful, pressing down on his ribs and it made it hard to breath while he was laying flat. Lucky mommy, she got to cat nap on and off all night with the hospital bed in the sit position so that the little guy could easily breath. Happily, after one night the fluid has mostly been absorbed in to his body and the pain is gone. Yay. We will be back before Christmas for our next treatment. I hope everyone has had a nice Thanksgiving. Thank you for following our journey and supporting us through prayers, good well wishes and monetary donations. Go Fund Me: Saving Andrew PayPal: Orlando_lorie@hotmail.com USAA account: by PM request.
An update from Andrews mom ----------------- Hi everyone. I wanted to do an update on Andrew as I know so many of you are following his journey and praying along with us as we find our way. This week we are back in Mexico. We flew in Tues and spent all day yesterday and today at the hospital. During that time we’ve had 4 PET scans and 1 MRI. We’ve fasted each day until 2:30 or later and I say we because we don’t eat if our little guy can’t. Last night was a rough one as he was up about every 2 hours with pain in his foot from where the IV was placed. That meant - no one slept last night. Having a hungry, super tired 7 year old, who can’t walk and isn’t easily understood when speaking is way less then fun to deal with. Mid day (at 1:30 when he was allowed to eat) he literally threw a 20 minute fit over a banana or lack there of. When you yourself haven’t eaten anything but a little snack bag of nuts in 23 hours, let’s just say patience isn’t my best quality - but I’m working on it. He’s asleep now and I’m enjoying watching him and thinking hopeful thoughts that tomorrow will be a better day. We meet with the doctors tomorrow evening to go over the scans. If you wouldn’t mind saying a prayer for us, I’d be very appreciative. I’d also ask that you say a prayer for all the kids down here and anyone in this battle. They are all our kids and they all need us.
I have not updated in a while... Andrew took a bad turn in the last month. The Dr's in Mexico figured out he had Hypoxia and it wasn't progression that was causing full body paralysis They started treating him and he has begun to get a little movement in his legs and arms and can make some sounds too. A good sign Today though I have a tear in my eye... he was rushed to hospital. His mother wrote... Prayers, thoughts, good ju ju... what ever guys... anything at all...
Thanks for the update. Not the one any of us would've liked to receive, but an update nonetheless. Best wishes to Andrew, hope the next update is a positive one!
With sadness... Andrew may not make it through the night.... When we told Paul... he lost it. In between his tears he said “friends never break. We’ll always be friends” Precious words from a 7 years old.
An angel got his wings... Poor little guy put in a hard day but he’s at pease now ....about 10:30 pm EST. I sincerely appreciate the thoughts and prayers and financial support. Buick guys are great bunch of people.
Sorry to read this Curtis. Give your son a hug for me. It's tough to lose a friend when you so young. And parents are not wired for this. Prayers for Andrew's parents.
Oh man, this flat sucks, no other way to say it. My heart goes out to all of Andrews friends and family. Some things in this world will never make sense....
Life doesn’t seem fair sometimes. Faith tells us there’s a reason for everything, but I just don’t know. I hope over time the pain fades and good memories prevail. Reading stories like this remind us how lucky and blessed we are to have what we do. I’ll pray for his family. Patrick
My condolences to friends and family... Do not stand at my grave and weep I am not there. I do not sleep. I am a thousand winds that blow. I am the diamond glints on snow. I am the sunlight on ripened grain. I am the gentle autumn rain. When you awaken in the morning's hush I am the swift uplifting rush Of quiet birds in circled flight. I am the soft stars that shine at night. Do not stand at my grave and cry; I am not there. I did not die. Mary Elizabeth Frye
I just came across this post. My heart goes out to the family. I am a survivor and do a lot for the cancer society in my area. I drive patients to treatments. I just lost my best friend 5 months ago to this disease. Please send my heartfelt condolences to the family. They are the ones left behind in pain. Andrew is whole now and suffering no more. He fought a valiant fight and is an Angel with wings. God has a special place for little boys. Thank you for keeping us updated and I am so sorry I didn't see this before. ppat and ws
